Linking community and technology to enable FAIR data
|How do I deal with pseudonymization and key files in a small-scale research?||Seperate data necessary for identification from data required from analysis and store this in a key file.|
|What do I need to know about lawful processing of personal data?||You need a lawful basis before you start processing personal data.|
|How can I access archived research data?||Several download tools are available for achieving this|
|What does storage cost?||Prices range from €15 to €180 per terabyte per year, depending on the exact composition for your situation|
|How to deal with the reuse of non-WMO medical research data without explicit informed consent?||Only when you meet the applicable criteria|
|How to deal with informed explicit consent for (non)-WMO research||Use the Model Proefpersoneninformatie in order to obtain your explicit and informed consent.|
|How can I make sure that I am working compliant with current rules and regulations?||Research data must be properly documented, archived, retrievable and accessible|
|What is pseudonymisation of personal data||Pseudonymisation means replacing any identifying characteristics of data with a pseudonym.|
|Why should researchers be interested in data curation?||Proper data curation has benefits for researchers and others who create, use and reuse data.|
|Where can I find more information about information security?||Visit the security pages on the Maastricht University website.|
|Where can I find applicable rules and regulations regarding research data management?||The Maastricht University website gives an overview of RDM rules and regulations.|
|Where can I go to with a general legal issue?|
Please contact the secretariat of the legal affairs department.
|Where can I go to with a GDPR/Privacy related question?|
Please contact the FHML Information Manager.
|Why do I need to register my research?|
To demonstrate that your organisation processes personal data in line with the GDPR.
|What is anonymisation of personal data?||Irreversibly preventing the identification of the individual to whom the personal data relates|
|What is personal data according to the GDPR?||Personal data is any information that relates to an identified or identifiable living individual.|
|What is the most suitable tool for online self-learning on Research Data Management Services?|
|What is the logo of DataHub Maastricht?||DataHub logo|
|What are investigations?|
The smallest amount of samples that still form a complete story
|How can I reuse medical data of WMO research participants?|
Informed consent is covered, since this is incorporated in the "Model Proefpersoneninformatie"
|Is it possible to reuse electronic health record data for scientific research?|
It is necessary that the patient gave permission for the reuse of his data.
|Is it possible to reuse EHR data without an informed explicit consent?|
Only when you meet the applicable criteria
|What are drop zones?||Temporary network folders with a short life span|
|What is a project?||A project is a way to categorize data together|
|Why do I need to have a persistent identifier?||Persistent identifiers ensure the findability of your data|
|What is DMPMaastricht?||A web-based tool for writing a DMP|
|What does NWO require from Veni/Vidi candidates?||To provide a paragraph on data management in your grants proposal|
|What do research funders expect?||Create FAIR data accompanied by a Data Management Plan|
|What data to keep?||The two major drivers are Research Integrity & Reproducibility and the Potential for Reuse|